SIDS Program Manual SIDS & Infant Death Program Manual and Trainer's Guide Trainer's Guide

Partnerships & Collaborations

Community and Civic Partnerships

A critical partner for all educational efforts is the community-based organizations at the local and State levels.

Working with SIDS/SUID Families

It is important to encourage family involvement in all programmatic efforts and support family participation at all levels. This could include involving family member participation on committees and advisory councils. Families may need orientation and support to help them participate. Many national or regional organizations have local chapters or members including First Candle/SIDS Alliance, CJ Foundation, ISA, NSS, SHARE, AGAST and MISS. These members are usually more than willing to assist local or State organizations in a variety of local efforts.

Ethnic/Racial-Specific Organizations

A number of African American civic organizations have been very involved with SIDS risk reduction. In 1998, NICHD joined forces with three national African American women’s organizations in a program to reduce the risk of SIDS among African American infants. The leadership and members of the National Coalition of 100 Black Women, Women in the NAACP and Alpha Kappa Alpha Sorority held three summits with NICHD to learn how to conduct SIDS risk reduction trainings and outreach activities in communities around the country.

There are many national and regional Hispanic organizations that are very interested in working to address Hispanic health care needs. The National Alliance for Hispanic Health can provide excellent resources. At the local level, there are numerous Hispanic community-based organizations which have emerged that are advocates and providers of health care for Hispanics. Most of these organizations are governed by community boards and have an infrastructure and networks to facilitate educational outreach efforts.