SIDS Program Manual SIDS & Infant Death Program Manual and Trainer's Guide Trainer's Guide

Research & Statistics

There are efforts underway to address these limitations and to develop a national model vital statistics system by NCHS, SSA and the National Association for Public Health Statistics and Information Systems (NAPHSIS).

Programs should:

  • Create, maintain and improve surveillance systems of SUID/SIDS deaths that can be disseminated to policy makers and advocates.
  • Gather data that includes demographic information such as race, ethnicity and geographic location which will help identify populations or locations that need particular attention.
  • Prepare or participate in Statewide or local needs assessments for SIDS. Publish and disseminate needs assessments.
  • Prepare SIDS data fact sheets.
  • Identify hazards, develop or address appropriate interventions and prepare reports to inform policy makers.
  • Analyze data from FIMRs and CFRs. Report and provide guidance for system improvements.
  • Collaborate with vital record agencies to ensure that relevant data is available, timely and accurate.
  • Evaluate and monitor program outcomes.