Research & Statistics

There are efforts underway to address these limitations and to develop a national model vital statistics system by NCHS, SSA and the National Association for Public Health Statistics and Information Systems (NAPHSIS).

Programs should:

• Create, maintain and improve surveillance systems of SUID/SIDS deaths that can be disseminated to policy makers and advocates.
• Gather data that includes demographic information such as race, ethnicity and geographic location which will help identify populations or locations that need particular attention.
• Prepare or participate in Statewide or local needs assessments for SIDS. Publish and disseminate needs assessments.
• Prepare SIDS data fact sheets.
• Identify hazards, develop or address appropriate interventions and prepare reports to inform policy makers.
• Analyze data from FIMRs and CFRs. Report and provide guidance for system improvements.
• Collaborate with vital record agencies to ensure that relevant data is available, timely and accurate.
• Evaluate and monitor program outcomes.

Developed by the Program Support Center at First Candle with collaborative assistance from the Sudden and Unexpected Infant/Child Death and Pregnancy Loss Centers.